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Stanford University Sleep
Disorders Clinic's Mali Einen has been taking daily doses of gamma
hydroxybutyrate for about 15 years now. GHB is outlawed as the date
rape drug and even though there is other medication that can be used to
control cataplexy, Ms Einen still prefers taking the "real
thing".
That's why Orphan Medical
introduced Xyrem, sodium oxybate, the same drug as gamma hydroxybutyrate.
To get her "fix", Mali went to work for Emmanuel Mignot, the
French doctor who prescribes the drug for some to use but not others.
Dr. Mignot told Mali that she needed to take the drug or else she would
keep falling due to cataplectic seizures. When GHB became illegal,
Mali didn't have to worry because she was on Dr. Mignoit's list.
Mali is just one example of
someone who uses GHB on a regular basis.
There are many other Malis out there, able to get medications they want
for disorders they have. But the majority of us are not so privileged.
Neil Hennessey (1980 - 2005)
wasn't as lucky as Mali. In 1999, Neil was diagnosed with cateplexy.
His doctor lied and told him their wasn't anything anyone could do.
Neil was persistent and spent time trying to obtain GHB. In 2002, OM
introduced GHB as Xyrem. Neil's doctors felt he was
"safer" living without it.
In 2006, Neil was on his way to
visit a friend when he fell into the street during a cateplectic attack as
an 18-wheeler was barrelling down the road. The wheels smashed
Neil's skull so badly that every bit of matter inside his head was
gone! Just how "safe" was Neil, anyway?
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